At TMC, our goal is to help patients with Sickle Cell Disease live life to the fullest.
We provide a healing environment, individual attention and a strong support system for our patients, with a quality of care based on current treatment guidelines and benchmarks of care.
Sickle Cell Disease
Sickle Cell Disease is a group of inherited red blood cell disorders. Sickle red blood cells become hard, sticky, and shaped like sickles used to cut wheat. When these hard and pointed red cells go through the small blood tube, they clog the flow and break apart. This can cause pain and damage to organs such as the spleen or kidneys. Sometimes people experience a prolonged period of pain - called crisis - in which emergency department visits or hospitalization may be necessary.
The Healing Environment
At TMC's Sickle Cell Center, the aesthetically-pleasing treatment area with soft lighting and soothing colors creates a nurturing environment. During a crisis state, unlike an emergency department, the Center is able to treat our patients' pain more efficiently in a quiet environment with the goal of initiating pain treatment within 30 minutes of arrival Our utmost concern is not just quick care but also caring about the patient’s unique needs and pain experience.
Our team creates an individual treatment plan for each patient, including a holistic approach to encompass long-term goals. The care is patient-centered and patient-focused, with complete attention on each patient's needs. Our staff knows each individual's medical history so we are better able to treat each patient's pain accordingly to their needs.
Our team also sees the importance of providing chronic disease management and strategies to modify the individual’s disease with the goal of decreasing acute pain episodes and supporting healthier outcomes. A strong focus is put on general health maintenance needs that are age and sickle cell specific. The center also provides primary care for other routine health needs such as sore throat, hypertension or diabetes management to not only the person with sickle cell but also their adult family member.
The Center recognizes the role of a strong community network in supporting the person living with sickle cell and is actively involved with other community based organizations interested in improving awareness and services.
A. Specialty and primary care to persons and their family with sickle cell disease
1. Staff – Internal Medicine, 2 FNP, 2 RNs, social work, PAC
B. Pain Crisis Management - IVF, opiate, other work up; direct admit to hospital from the clinic if needed
1. customized treatment plan
2. direct admit to hospital if needed.
C. Sickle Cell Chronic disease type management – specific benchmarks of care for sickle cell care
D. Disease modification with Hydrea, red blood cell exchanges.
E. Inpatient consultation and interdepartmental collaboration
F. Routine AHM/Primary Care
G. Trait testing and counseling
H. Staff and Community Education
I. Networking locally and nationally
J. Transition from pediatric to adult care.
For more information about TMC's Sickle Cell Center, please call 816-404-4290 between the hours of M-F 8 AM-4:30 PM.